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| AIDS Activism
Lesbian Activism Since the beginning of the AIDS epidemic, lesbians have been active in fighting the disease. They often supported gay male friends as they struggled with the disease, participated actively in ACT UP and other AIDS organizations, and comprised a small number of those infected. In spite of their involvement, lesbians were often thought to be at little risk for HIV infection. Yet lesbian AIDS activists repeatedly challenged such assumptions, arguing that lesbians participate in many risky behaviors. Women from ACT UP maintained that labeling lesbians as a low-risk group could lull them into a false complacency and put them at greater risk for infection. Lesbians also often brought a feminist perspective to AIDS activism, prompting many gay activists to consider the disease in the context of a broader movement for social change. Feminists within the AIDS movement have pushed for broader solutions to the crisis, demanding nationalized health care and universal sex education. Decline of AIDS Activism Although the disease continues to wreak havoc in the gay community, AIDS activism has waned since the early 1990s, at least in part because of the development of effective treatments for the disease and the lessening of the stigma associated with it. As AIDS has become a mainstream disease, activism has come to seem less urgent than it did in the 1980s and 1990s, at least for those with access to the new medications. As people with AIDS live longer and the disease has come to seem chronic rather than acute, AIDS activism has become a long term and less explosive struggle. With many of their leaders dead from the disease or now absorbed into the AIDS service industry, ACT UP and other radical groups have grown moribund. Notwithstanding the monumental advances in drug therapies in the mid-1990s, however, there is as yet no cure or vaccine for the disease. Legacies of AIDS Activism One of the legacies of AIDS activism is that it empowered people who suffer from a disease or oppression to take charge of their political lives and establish a greater degree of authority over what happens to them. As Steven Epstein writes, the AIDS activist movement "is indeed the first social movement in the United States to accomplish the large-scale conversion of disease 'victims' into activist-experts." Yet not everyone believes that AIDS activism has succeeded in making the voices of HIV-positive people central in the debate. Michael Hallett maintains that AIDS activists continue to be marginalized in the struggle to determine the meaning of AIDS in our culture and its place in our social institutions. He argues that much of what passes for AIDS advocacy fails to serve HIV-positive people, but rather caters to the interests of the AIDS industry, including government officials, non-profit employees, and scholars. He rejects the "assertion that activism has been a highly effective remedy to HIV-positive voicelessness," and "in the battle for control over the social construction of HIV-disease, AIDS activists have well been ignored and continue to be marginalized." Given the complexity of the AIDS epidemic, there is truth in both assessments. AIDS activists may not have gained control over the disease and its meanings, but they certainly have transformed its political context. Certainly not all issues facing PWAs have been resolved, nor is every PWA able to become an activist-expert. For those already on the margins because of their gender, sexual orientation, race, class, or age, there are still barriers to treatment and education. Yet the past twenty years of AIDS activism has overwhelmingly improved the lives of PWAs and others. AIDS activists have sped the development of effective treatments for the disease and have helped create acceptance and compassion for those suffering from the disease.
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arts >> Overview: AIDS Activism in the Arts social sciences >> Overview: AIDS Law literature >> Overview: AIDS Literature social sciences >> Overview: Circuit Parties social sciences >> Overview: Disability Issues social sciences >> Overview: Gay Rights Movement, U. S. social sciences >> Overview: Nursing social sciences >> Overview: South Africa social sciences >> Achmat, Zackie social sciences >> ACT UP social sciences >> Altman, Dennis social sciences >> Aron, Jean-Paul arts >> Corigliano, John arts >> Haring, Keith social sciences >> Hattoy, Robert literature >> Holleran, Andrew arts >> Jones, Bill T. social sciences >> Jones, Cleve literature >> Kramer, Larry literature >> Kushner, Tony social sciences >> Maddow, Rachel arts >> Mapplethorpe, Robert literature >> Maupin, Armistead literature >> McNally, Terrence literature >> Monette, Paul social sciences >> Nkoli, Tseko Simon literature >> Saint, Assotto literature >> Shilts, Randy literature >> White, Edmund social sciences >> Wilson, Douglas arts >> Wojnarowicz, David
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| Bibliography | ||
ACT UP/New York Women and AIDS Book Group. Women, AIDS, and Activism. Boston: South End Press, 1990. Altman, Dennis. Power and Community: Organizational and Cultural Responses to AIDS. London: Taylor & Francis, 1994. Corea, Gena. The Invisible Epidemic: The Story of Women and AIDS. New York: HarperCollins, 1992. Crimp, Douglas. Melancholia and Moralism: Essays on AIDS and Queer Politics. Cambridge, Mass.: MIT Press, 2002. _____, ed. AIDS: Cultural Analysis, Cultural Activism. Cambridge, Mass.: MIT Press, 1988. Epstein, Steven. Impure Science: AIDS, Activism, and the Politics of Knowledge. Berkeley: University of California Press, 1996. Hallet, Michael A., ed. Activism and Marginalization in the AIDS Crisis. New York: Harrington Park Press, 1997. Patton, Cindy. Inventing AIDS. New York: Routledge, 1990. Shilts, Randy. And the Band Played On: Politics, People, and the AIDS Epidemic. New York: St. Martin's Press, 1987. Stockdill, Brett C. Activism against AIDS: At the Intersections of Sexuality, Race, Gender, and Class. Boulder, Col.: Lynne Rienner Publishers, 2003. Stoller, Nancy. Lessons from the Damned: Queers, Whores, and Junkies Respond to AIDS. New York: Routledge, 1998. Treichler, Paula. How to Have Theory in an Epidemic: Cultural Chronicles of AIDS. Durham, N. C.: Duke University Press, 1999.
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| Citation Information | ||||
| Author: | Bateman, Geoffrey W. | |||
| Entry Title: | AIDS Activism | |||
| General Editor: | Claude J. Summers | |||
| Publication Name: | glbtq: An Encyclopedia of Gay, Lesbian,
Bisexual, Transgender, and Queer Culture |
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| Publication Date: | 2004 | |||
| Date Last Updated | March 7, 2011 | |||
| Web Address | www.glbtq.com/social-sciences/aids_activism.html | |||
| Publisher | glbtq, Inc. 1130 West Adams Chicago, IL 60607 |
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| Encyclopedia Copyright: | © 2002-2006, glbtq, Inc. | |||
| Entry Copyright | © 2004, glbtq, inc. | |||
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